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81
General Discussion / Re: phantom pains
« Last post by DaveC on February 28, 2014, 12:36:10 PM »
It hasn't been quite 2 years since my accident, and I still get em.
However not as often. Maybe once a day.
My issue is, the seizures my leg goes into, mostly at bed time, if I don't keep my med level up there.
But, the phantom pain, yea, I just grimace and bear it.

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General Discussion / What system is best for an AK
« Last post by DaveC on February 28, 2014, 12:08:45 PM »
Well, I finally got my prosthesis's attention that my socket sucks, but, unfortunately not literally.
I got the Plie' 2.0 and it's a great knee, but my socket, as usual, doesn't fit right.

Other than it's too long (the ankle shaft is too long, but it's the shortest they got. My residual is long)
It rubs/chaffs/rash's which is partly due to the liner, but I think I got that worked out
But, as usual, it loses suction. It's a Neg Pressure system. Just the Liner, put it on,  push it in the socket, press the air valve and release when it's tight.

But, after a short time, it's back to pressing down on my stump, releasing air, etc, over and over again. Every time I stand up, and after a few minutes of walking.   I shouldn't have to continually bend over to release the air, get my suction back, before I walk another 50 feet.  And at the end of the day, my stump hurts, is sore, and it hurts to press down.

So, we're looking at a different system.
He suggested a neg pressure  with a pin.
Some people I've talked to don't like the pin system but they're BK's, so not sure it I can use that in my decision making process.

So, I'm asking  those AK's here, what attachment system you got, do you like it, what would you rather have if it isn't satisfactory, etc etc.

I know, it's only been not even 2 years since my accident, and I'm bitching, but, others in our support group that had their amputation AFTER me are already set with he best and walking fine.

My problem is, I'm going thru the VA, and, yes, most of what you heard about the long delays, I am experiencing. But, fortunately, one of our support group members is on the board, and put a bug in the Chief's ear, and now I'm starting to get attention.

But, I need to know what to ask for as far as what method of attachment is good/better/best.


And, here's a article on our group
http://www.thisweeknews.com/content/stories/clintonville/news/2014/02/24/support-group-keeps-amputees-moving-inspired.html

I'm on the far right

Thanx

Carry on

Dave
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General Discussion / Re: online liner suppliers
« Last post by snowbear on February 26, 2014, 08:33:42 AM »
 :D
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General Discussion / Re: online liner suppliers
« Last post by Steve C on February 26, 2014, 08:00:27 AM »
I went to order Alpha Max liners (non-pin) back in September and they said they didn't make them anymore but that they did have a replacement. Same basic liner but a new model but that the alpha max was discontinued. I'd hope that they have a replacement for you that is similar?
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General Discussion / Re: online liner suppliers
« Last post by snowbear on February 26, 2014, 07:18:17 AM »
Yes they stopped making gel liners, found out because my prosthetist ordered mine, and couldn't  the get them. Was told they stopped making them in November.. :o  so now I have no idea what I. Will wear..very angry over this.
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General Discussion / Re: online liner suppliers
« Last post by Steve C on February 26, 2014, 07:09:10 AM »
Stopped making them? Really? :(

How did you find out?
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General Discussion / Re: online liner suppliers
« Last post by snowbear on February 25, 2014, 08:53:40 PM »
Ohio Willoward has stopped making, gel liners. >:(
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General Discussion / Re: phantom pains
« Last post by snowbear on February 24, 2014, 07:06:04 AM »
Have tried it all  meds nerve blocks. You name it nothing helps.
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General Discussion / Re: phantom pains
« Last post by Dolphin on February 24, 2014, 12:12:50 AM »
Talk to doc sometimes they can give u something for it. Also heating pad sometimes help.
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General Discussion / Re: How is everyone braving the winter?
« Last post by Dolphin on February 24, 2014, 12:10:27 AM »
I thing spring is almost here in the south. Hope winter is over for the people really affected by it. I know it is hard to walk in, but love it to ski in.
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