Recent Posts

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1
General Discussion / Rough skin and pain bka
« Last post by Steve C on March 28, 2017, 05:57:35 AM »
Hi lads and ladies.
I haven't posted for a age but need some advice. On the inside of my knee I have a series of bumps with a callus 'peak' which have been causing some pain. They may be hair follicles (?) but no hair is present. I'm not sure if they are ingrown as they would be probably look different.
Any advice to get rid of them?

Hope all is well and thanks
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General Discussion / Anybody out here any more?
« Last post by Dolphin on February 08, 2016, 09:03:35 PM »
Does anybody log on any more😥
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General Discussion / Re: How are you?
« Last post by Steve C on December 11, 2014, 05:28:01 PM »
Doing fine Anne. Weathering the storms (literally) and keeping myself busy. No real scandal!
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General Discussion / How are you?
« Last post by annieg on October 01, 2014, 03:04:28 PM »
Hi all,  Just checking in.   Wondering how you are all doing.  I check in once in a while and I haven't seen much going on.  Hope you are all well and enjoying life!  annieg
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General Discussion / Re: What system is best for an AK
« Last post by Dolphin on July 20, 2014, 11:50:14 PM »
So how are you doing Dave? Back on a leg? Hope all is well.
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General Discussion / Re: Hello
« Last post by Dolphin on July 20, 2014, 11:45:21 PM »
It is ashamed you should be denied Computer knees, also Freedom makes a hydraulic ankle foot called the Kintera.  I did not like the endolite hydraulic ankle foot ( think it was the echelon)
Because as a bilateral it is always moving and was heavy, the extra weight during a full day means a lot.
I hope they change there mind and if I can be off any help msg me. You deserve what works best for you:)
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General Discussion / Re: 12 year old boy asks for amputation
« Last post by snowbear on June 26, 2014, 06:08:37 PM »
I had the same thing, this boy has went through many unsuccessful operations because of it. Amputation was suggested many times to my parents, but they rejected and tried to save my leg. When amputation would have been the better choice. I think theses parents are wonderful for giving this boy a choice..in the long run I developed a bone infection and had no choice but to  loose my keg 10 years ago..I only wish I had done this as a child and escape all the painful, useless operations that excluded a leg brace all my life until amputation, pins, rods, fixaters  screws, and what ever else they tried on me. 
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General Discussion / Re: Hello
« Last post by waqas on May 26, 2014, 08:14:02 AM »
Hi guys and apologies for such a late reply. As you all know as started trialling the legs a while back but in November 2013 my prosthetist made an application for funding to the NHS for the Orions (apparently and according to all the tests we did, she said they preformed the best which I did not agree with, I think it was a bias opinion as she works for the Orion manufacturers lol).

I was not complaining as she has been a great prosthetist  and anything would have been better then the TotalKnees. We heard back in March that funding request was denied on the following grounds:

The panel considered the case carefully and noted the following:

1.     There is currently a policy in development which will determine NHS England commissioning arrangements for prostheses, including microprocessor prostheses.  Advice from the Programme of Care Lead is that no microprocessor prostheses are currently commissioned for new patients pending this policy.

2.     The panel considered the arguments for clinical exceptionality put forward in support of this request and recognised that this patient has poor gait and mobility and that he has a need to transfer to adult knee prosthetics.  They also noted that the currently commissioned prosthetics would be the usual option for this patient.

3.     The panel considered whether there would be an identifiable cohort of patients who would also wish to use microprocessor prosthetics.  Although this patient may be unusual in having quadrilateral amputation, the panel could not know that there wouldn’t be others in similar circumstances, wishing to have microprocessor prosthetics for perhaps different but equally legitimate clinical reasons.

4.     Although this patient has had an opportunity to trial microprocessor prosthetics, with reported good effect, the panel felt that a decision to fund this patient would pre-empt the assessment of the clinical and cost effectiveness of microprocessor prosthetics currently being carried out by the Clinical Reference Group.

Regrettably, the IFR Panel did not agree that the IFR should be funded.


It was extremely heartbreaking as I was wheelchair free for the first time due to the bionic legs, but that's the way of the game I guess. Apparently the Clinical Reference Group should decide about funding soon (but soon can be imminent or next year on the NHS) and I will be at the top of the list for whatever bionic limbs they decide to fund.

In the meantime they were thinking of putting me on either the VGK or 3R80's.

I'll keep you updated.
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General Discussion / Re: Where'd you go?
« Last post by annieg on May 18, 2014, 09:28:19 PM »
I have missed you all!  Spring is finally here!!! I live near Cape Cod.  I thought we might miss Spring this year and go right into summer.  Life is good and I hope you are all well.  annieg
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General Discussion / Re: Help with a problem???
« Last post by annieg on May 18, 2014, 09:22:07 PM »
I wrote on their Facebook page and got a response!!  I explained the situation.  It took a while but I finally got an email with an apology and a $250.00 voucher for future travel.  It's too bad you have to make a big fuss to get results.  Thanks for all the encouragement! annieg
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