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Messages - JClark

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31
General Discussion / Re: How do you all cope with sweating?
« on: April 22, 2010, 06:17:11 AM »
I also have my issues with sweating, and have no perfect cure.

A buddy of mine (double AK) will occasionally get injections of botox into the sweat glands in/near his stumps.  This reduces the sweating for him for about 6-8 weeks (or maybe a little longer?).  Definetely something you need to talk to a doc about.  My friend researched it online, took the info to his doc and got it approved that way.

J-

32
General Discussion / Re: amputee board (leg rest)
« on: April 20, 2010, 09:11:10 AM »
Dick

You're gonna miss out on meeting my older brother then..... And there is MUCH less of me to see.  I've lost 14 pounds since the first of the month.  Yippie yippie joy joy.  (I'd be doing a happy dance, but, well, you know what comes next)

33
General Discussion / Re: amputee board (leg rest)
« on: April 19, 2010, 07:53:53 PM »
Now that you're a double BK likle me. the wheelchair point s just mentioned are important.
I've been playing with balance points on my chair since I bought it in 2002, so I'm good there. 

As far as an elevating board goes, I did it the cheapie way.  A thin board about 2 feet by 6 inches slid under the wheelchair seat cushion, and a small homemade foam cushion for the stump.

If you're handy with tools, often you can make a gizmo far cheaper than some fancy item sold in medical supply stores at grossly inflated prices.
I'll show you the board I ordered, hopefully Friday at the golfing.  There's no way I could build one this style for this price.  And if I *were* handy with tools, I never would have lost the left leg.  ha ha ha haha!


34
General Discussion / Re: amputee board (leg rest)
« on: April 18, 2010, 08:54:20 AM »
Thanks, yeah, I know all the reasons for having the stump rest.  Just wasn't sure if anyone else had seen this fancy one.  I'm gonna make my own little pad - the vendor didn't seem to have them listed, or maybe they're included.

My particular wheelchair does not have swing-away leg rests, it also doesn't have amputee features.  I ride a Quickie GPV, a great little ride.  And being the daredevil type that I am, I only use anti-tips when playing basketball.

J-

35
General Discussion / amputee board (leg rest)
« on: April 17, 2010, 07:47:19 PM »
Have any of you seen an "amputee board"?  They had something at the hospital, it slid under the wheelchair cushion, stuck out and you rest the stump on it.  But it gets in the way, and sounded expensive when I asked to buy one.

Then I did a google search and found this:
http://www.southwestmedical.com/products/Standard-Amputee-Board-27855.html
I found this at several vendors, one of them for under $125

If I were going to build one, this is pretty close to the design I'd have come up with.

I'm just curious if any of you have something like this, have seen something like this, etc.  I made the leap (ha ha) and ordered the one for $125  If you're curious, I'll let you know when it arrives, how well I think it works.

Oh, and if you look at the pictures, I think some of the black stripes are velcro strips so you can velcro a pad to the stump board.  Pads not included (or at least not listed on the web pages).

36
General Discussion / Re: Question for DBKs
« on: April 17, 2010, 11:45:38 AM »
This morning I took my old (spare) leg and put on the shortest stuff I could find around the house.  I think I'm about 3" shorter but it made getting around the bathroom easier.  It also make the light switches much higher!

37
General Discussion / Re: Question for DBKs
« on: April 14, 2010, 09:38:32 PM »
Hi Jason - sounds like you are doing well. Hope your recovery is easy and you quickly find your new normal life. Herb
Well, what is "normal"?  I did go back to school, although I make no guarantee about actually getting to all my classes.  One class required tutoring 4th graders at a local elementary school - They are waving that requirement for me as I've done this previously.

Getting to school gives me easy access to hot, cooked meals at a very reasonable price.  And bathrooms I can get in and out of with the wheelchair.  Although I'm sure a few have done a double take, seeing me napping on the couch in the student center lobby.

38
General Discussion / Re: Question for DBKs
« on: April 12, 2010, 07:40:46 PM »
Thanks Dick.  Yeah, dbk changes some things.  I got a good test period with the external fixator in 2008..... But this is still different.  I still try and put my foot through clothes first, but can't find the foot.  Then I sit on the edge of something and try to use the right foot to stabilize myself when I look for my left prosthetic.  I haven't fallen on it (yet!) and hope that I don't for a long while.

People are being very very helpful - and surprisingly - I'm letting people help me a bit.

I didn't *need* pain meds sunday when I went to bed, but they would have helped me sleep.  I'm gonna take them tonight so I get a good night sleep.

I DO plan to be at the presentation on the 22nd and the golf event on the 23rd, but not golfing.  My brother will be there, so just look for an older me.  (He's 59, but hates it when people assume he's my dad....)

39
General Discussion / Re: Question for DBKs
« on: April 11, 2010, 07:37:32 PM »
Well, for better or worse, it's done.  I got into surgery about 1:30pm on Wednesday, and didn't let them send me home until after 3pm on Friday.  Yeah, it's a pretty short hospital stay, but it's longer than what they wanted me to stay.

The doc said he did the right stump to match the left, but from the swelling, bandages, etc, it does look about 2" longer than the left.  I'll have to see what it looks like when it heals up more.  Oh, and I have a HUGE dog-ear on one side of the stump.  I have no idea why it's so big.  But again, it'll take some time to see what happens as it heals up.

I'm feeling better, and my pain levels have dropped so much!  Sure, there is pain related to a fresh operation, but the major pain I've had for 2 years is gone.  I actually had a pain level at the hospital at "2".

40
General Discussion / Re: Question for DBKs
« on: April 01, 2010, 11:31:39 PM »
Yep Dick, you're right about the doc and me and my leg guy making the real decisions.  I was just curious how many have them the same length, etc.

You never met Jonathan, he's a LBK that I met shortly before my amp in 2003. He has about 2" below the knee (but just ONE amp) and he can walk, but wow does he wobble!

I had my 3rd opinion today.  She left a hope that some kind of repairs might be possible, but after we talked about quality of life as well as possible outcomes, I'm going ahead with the amp on the 7th.  I still can't believe they want to kick me to the curb on the 8th!

Jason

41
General Discussion / Question for DBKs
« on: March 27, 2010, 01:14:06 PM »
When the doc talked to me the other day, he said he wanted to make this stump match the other as closely as possible, length, the Ertl width, etc.  I thought that was a good idea.

I also talked to my leg guy, and he said "don't get hung up on having them exact matches".  He said having a longer stump - even if it's an inch or three longer - can give better leverage and make walking and balance that much easier.  He said that being a double, it's easy enough to go up and make room for a component.
I asked him, what about starting off life shorter for better balance.  He said that's my call, but he sees no problem starting me at my current height or even up an inch or so if necessary for feet and components.  I asked about DAKs cause I know length and starting out short benefits them quite a bit and was told dbk is different from dak in this respect.

So my question to DBKs out there:
Are both your stumps the same length (or within an inch of each other)?

Do you wish one or both of them were longer?

Are you the same height you were before, if not is it up or down?

Did you loose both at roughly the same time, or was there significant time (more than a year) between them.

Thanks for your input folks!

And for the non-dbk folk out there, when I give people my name and number, I tell them "I'm one-legged Jason" to keep be different than the other guys I know named Jason, or my one-legged Vince friend.  (Or my no-legged vince friend).  What new nickname should I give?

Jason

42
General Discussion / Re: funny suggestions please
« on: March 27, 2010, 01:06:33 PM »
Someone told me the other day that I'll soon be able to "put your best stump forward".

My only hope is that the insurance company doesn't screw this up.  Because I was out of town with mom's sudden stroke and death, their web site says "no coverage" but I have a receipt for the payment.  I'm trying not to stress and focus on that.

43
General Discussion / Re: funny suggestions please
« on: March 25, 2010, 09:58:00 PM »
Yeah, I've been researching for a while.  And yeah, the ortho doc that I've been working with said if this happens, he wants me to have a different doc in his office do it because that doc does the Ertl.  So that's a plus.

I had a laugh reading paperwork at the preop tests today.  "If you have two of something, make sure you specify on the day of surgery if it's left hip or right hip, right eye or left eye, etc to eliminate problems."  So if the doc can tell hand from foot, I think I'm ok with the left vs right thing.

44
General Discussion / funny suggestions please
« on: March 25, 2010, 08:09:23 AM »
I'm looking for suggestions for my facebook status..... Today's is "I'm planning something lame for April 7th"
I don't want to give away the whole thing right off tho, suspense can be fun.

Yesterday my doc and I scheduled a right bk amp for me.  Yeah, read my little signature line, this is my "good" foot according to most people.  It's not good anymore, trust me on that one.

Jason

45
General Discussion / like a tornado.... but not
« on: November 20, 2009, 07:29:54 PM »
Hey there!  I've not been on here in ages.  School has been keeping me hopping.  Well, you know what I mean.

I bought a pair of "Tornado" tips for crutches a few years back.  I really like them, but I can't use crutches anymore.  So I thought I'd see if they make tornados for cane tips.  They do, but only if you buy THEIR CANE.  (http://www.fetterman-crutches.com)

Does anyone know of cane tips that are similar to these?  They were good on wet, they had a nice wide base....

Thanks.
Jason

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