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Messages - Annie

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General Discussion / Re: Double amputee dream
« on: April 16, 2012, 01:24:40 PM »
not exactly, JClark.  Am a bilateral also (many years) .... I have had some odd dreams over the years regards my legs though.  In my usual dreams I usually have my own two legs, I walk, run, etc. etc., just like you normally would, now and again though I get dreams that kind of highlight the prostheses or me not walking ... usually if I get that kind of dream, I pretty much know that within the week I will be having some sort of problem with one of the legs, or not walking for some reason ...  it's pretty reliable! maybe my subconscious realizes things are not right before my conscious brain does!

General Discussion / Re: Who is my "doctor"?
« on: November 28, 2011, 04:28:25 AM »
It's been almost ten years since my amputation, and I'm beginning to realize that for the most part, I haven't actually had much if any medical care or guidance. Apart from one meeting soon after where I selected a prosthetist (which was a disaster unto itself), practically everything I've done has been dealing directly with prosthetists, with no involvement from any kind of physician. With the sole exception of my GP, who writes my prosthetic scrips purely for insurance paperwork purposes. He freely admits he knows virtually nothing about amputees or prosthetics. I don't blame him, he's a good GP, but not a specialist.

Anyway, so I've had almost ten years of marginal-at-best experiences with my prosthesis. I'm beginning to wonder if these two facts are related. Would I be doing better if I had a doctor who was actually in charge of the situation, who actually knew what he was doing with it, maybe seeing a larger picture that my current crew is somehow missing? What medical specialty should I look at, how can I identify someone who can give me more insight into how I should manage things?

If you were in the UK you would probably be seen by what they call Rehab consultants at your prosthetic centre (DSC), though not every centre has these and I went myself some years without seeing one.  Years ago it was these doctors who used to prescribe the prosthesis and sign them off to you at delivery, I can remember thinking they were a bit of a waste of time when I was younger and without problems with my legs.  However, when you do encounter problems they can be worth their weight in gold and authorise scans, x rays etc and refer you to the right people, they work together with the prosthetist and physio's usually.

Health and Fitness / Re: flu shots
« on: November 15, 2011, 03:55:10 AM »
I am not in your part of the world and over the injection it is just given to you if you are elderly or unwell, and as amp I don't fall into either category, but after one of someone I know's recent experiences ,I wouldn't be having the injection either.

I have had bad flu I think once in my life and I was ill but the symptoms I had were understandable and treatable, whereas the symptoms this person has had are quite weird and seemingly not treatable.

  Of course there is no proof that the injection is responsible which is part of the problem, and the doctor seemed to think it not connected, though I have researched on internet and saw similarities to others had had.  It has been more than a sore arm,  they were unwell a day or so after with a v sore throat and flu like symptoms and it went from there, its now been about four weeks and they seem to be improving, but like I say no answers.

General Discussion / Re: Cracked socket
« on: May 10, 2011, 06:14:59 AM »
I had a cracked socket couple of years back and I had to have it completely replaced, didn't have a spare so was off my legs for just over week, which wasn't bad as they rushed it through.  Though used to wear the old metal legs years ago, a couple of which I remember the metal splitting open down back of the calf, a metal patch put on and it used to be good to go for another couple of years, much less trouble and probably more eco friendly, LOL.

I have just been given one of those polypropoline sockets, I think, also and am wondering if it will be up to it.

My History / Re: Hi from new user
« on: April 01, 2011, 02:28:14 AM »
My name is Esther, I've been a B/K amputee since 1970 (trauma).

Now that I'm middle-aged, I've taken up bicycling to fend off type 2 diabetes.
I live in the U.S.

I tried the pin-type of suspension a few years back, but my residual limb is rather bony, being from a childhood amputation. The pin-type suspension is not comfortable for my small limb, and I'm back to suspension sleeve.

Hi Esther,

I am Annie and I became an amputee in 1970 also, and am probably now also middle aged <grin>.  I am bilateral and had one of my residuals re-done a couple of years ago, which now makes fitting a prosthesis on that side easier, but am currently having problems with the other side.  Like you say yours is, the residule limb is quite bony.  I can't tolerate the pin-type suspension at all so always wear a suspension sleeve, but have spent numerous appointments over the past year trying to get a new prosthesis makes that I can walk in comfortably, and doesn't cause more problems than the current one, which I was told needs replacing, I am wearing.

Good luck with the bicycling, I use the exercise bike in the gym and find am limited due to sweating with the liner, but find its a really good all body workout.

I have been following this and suspect that we are probably not getting the full story here, maybe there are other problems, they mention certain things but not sure how that affects her getting around. To be honest the benefit system over here is a bit of a minefield and I am not sure of her mothers circumstances, but, as an amputee, I know it is sometimes difficult to know how to 'tick' or 'not tick' the boxes on the questions asked on benefit forms.  We can go from looking relatively normal and fairly active to 'disabled' in a matter of minutes, being dependent on whether we are wearing prosthetics, how well they fit, are working etc. etc.
When I lost both my legs as a young teenager, things were very different to how they are today, there were no benefits on offer and both my parents worked, albeit part time in my mothers case, and about eighteen months later I myself also had a part time job I did at weekends and school holidays, though I was provided with a taxi which used to take me to school and back for several years. My mother used to accompany me to my many hospital appointments in the early years, but I presume this is more difficult for single parents having to also support families, and as someone else mentioned the job market in the UK is particularly difficult at the present time, and even though we don't want always want to admit it, living as an amputee is, as I often put it, high maintenance sometimes.

As well as this,  the prosthetic service in the UK can be a bit of a post code lottery, so not sure what the situation is  for this child, but people sometimes report waiting several weeks for appointments, difficulties in access to specialists, waiting for components etc, lack of spare limbs etc. etc. and if you are unable to wear your prosthesis, the weeks can tick by.  Its very different to the service I had nearly forty years ago as a teenager, the prosthetics I wore then were pretty basic, and made out of metal on hospital premises without the technology we have today, but for the best part they kept me very mobile most of the time, which was lucky for me because .... and this is I think the big difference .... that  in those days was if you couldn't walk or access somewhere, then you usually didn't go ... things weren't put in place for you ... so ... there are always swings and roundabouts  ....  maybe we shouldn't judge to harshly and that the help she is currently getting makes it easier for her to do the things she is currently able to do.

In my opinion / Re: NEW LEG !!!!!
« on: November 04, 2009, 03:14:35 AM »
"King Rocky"

Sorry I missed seeing your, I am LBK amp. & since I had it covered; it definately feels longer than it was.  I have to assume they have added on the bottom of my foot.  I can see no other reason for the difference in length.


Hi Ann

I am b/k too ann, like you could see no other reason for the difference in length, as on my b/k's the cover comes over the outside of the leg only.  However, I can't count the times where my prosthesis has been a perfect fit at the final fitting, then when I have gone to collect it, it hasn't fitted so well
and they always swear they haven't touched anything, other than put the cover on.  Am not sure how you wear your prosthesis ann, whether it is socks or liners, pin or whatever, but it could be that the shape or volume of your own leg has changed very slightly so you are a fraction out of it and this is making it feel longer - had this myself recently.


General Discussion / Re: Waiting times
« on: September 22, 2009, 09:29:45 AM »

1) If I had a spare limb I could wear then probably be happy to wait a week, if I didn't have a spare then probably hope for the same or next day
2) I have had this done in about a week/ten days and think thats ok (although it very much depends on whether what I was currently wearing was comfortable)
3) In an ideal world, a couple of weeks would be nice, (I have in the past had to wait about 4 months which I think is totally unacceptable) so probably about 4 weeks would be ok.  However, think I'd rather them get it right and take it home with it fitting ok even if that takes an extra fitting session than get it quickly, not fitting and keep having to go back for adjustments.

Jack & Steve ~ yes, they could transfer the cheetahs between limbs if there was no damage, but it would depend upon her weight (components are usually prescribed with activity levels and weight in mind) ... she's going to grow, so her weight will increase.

My concern is that her current limbs are from Dorset Orthopaedic, which are a private company. When she out grows those limbs, what will happen then? The NHS is pretty short of cash (some centres won't prescribe Farabloc and many won't prescribe C-legs, even to bilateral AK's), so I do wonder if cheetahs at her age are a good idea? I mean, it's bad enough learning to walk on conventional limbs, but to learn to walk and run on cheetahs and then suddenly not to have them ... it's cruel IMHO.

But, there again, I suppose a lifetime's fundraising may help?  ;) 

I kind of share your concerns Minerva, and have seen a few children in this part of the world who have had money raised for them to buy limbs from different private companies.  Do worry what happens when the money runs out,  and perhaps the possibility of being unable to have the type of limbs which enabled certain activities or were cosmetically superior, maybe when they are hitting their teenage years.

Actually witnessed something similar to this within the NHS quite a few years back when new types of feet were being introduced, and a teenager was told she could no longer to have the type of foot that enabled her to do a certain activity - because they didn't make it in an adult size which she at that point needed.

That said though, I have sat in a few fittings rooms myself unable to get comfortable limbs, and as a parent if it was one of my children needing limbs which the NHS could not deliver on, I think I would also be seeking alternatives for them to have the best that they could have to make them mobile and would probably be thinking more short term than long term.

Just hope they can keep the fundraising going for her.

General Discussion / Re: Willow - my dog passed away
« on: April 10, 2009, 04:27:44 AM »
So sorry to hear about your lovely dog Mitchee.  My daughter had to make the same decision about one of cats a couple of weeks ago, so know how difficult that is. 

General Discussion / Re: update on getting my new legs
« on: April 10, 2009, 04:24:32 AM »
Really bad luck on that PLJ, though at least you and your wife are both ok and not more seriously hurt.  A slightly smaller vehicle, than the one that hit you, did the same to me in my car about 15 years back, turned out the guy wasn't insured and I lost my no claims.  I always find being without my car difficult, so know how you feel, feel free to vent. Take care of yourselves.

My History / Re: Intro....
« on: April 01, 2009, 02:00:38 PM »
Hi Ally

General Discussion / Re: Good leg versus bad leg.
« on: April 01, 2009, 01:58:51 PM »
what happens when you dont have a good leg to talk about, like this morning both of them hurt like h when i put my legs on. So i dont really know which one is the good one.

I have days like that too PLJ

General Discussion / Re: Good leg versus bad leg.
« on: March 30, 2009, 02:00:37 AM »
Well, folks:

I have TWO fake legs, so there's no "good leg/bad" leg distinction here.

I've got both original knees, but not much below that.

Well, I am the same.  Both legs are amputated below the knees.  Although one leg is skin grafted so have always thought of the other one probably as my 'good' leg.  I had a revision amp  on the grafted side about six months ago so my prosthetic leg on my right side has got me quite nicely through this period, although I have used a wheelchair I have used the prosthetic leg  for transfering in out the chair etc. etc.

General Discussion / Re: Skin Graphs
« on: March 05, 2009, 02:49:57 PM »
I don't think I need to send you a message - I just have to say 'Grumpy Old Women'?  ::)

Yep, message understood !!

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