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Messages - JClark

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General Discussion / Prosthetist in DC area
« on: July 09, 2012, 08:41:09 PM »
I'm looking for recommendations for prosthetists in the DC Metro area.  I am moving to PG County in Maryland and am looking for suggestions from current patients for companies in this general area.

When I get a list of 2 or 3 I'll give them a call and setup an initial consultation to see who I like.  I did that in PA and got a really great prosthetist.  I just can't drive 4 hours to see him anymore.


General Discussion / Double amputee dream
« on: February 23, 2012, 01:27:07 AM »
Here's a funny dream.... 

A few months back I had a dream that I woke up, looked at all the prosthetics next to the bed and basically tossed them all away from me.  I stood up (on two real legs) and began walking to the bathroom.  The toes on my left foot vanished.  When I took the next step, the toes on the right foot vanished.  Then the left foot vanished, then the right.  Then I was walking on my tibias as though I were a double symes.  Then I was walking on double bk stumps and fell over.  (remember this was ALL a dream)

It was the morning of one of my appointments with my phsyiatrist and prosthetist, so just for fun, I told them about this dream.  The phsyiatrist said that at some point, every double amputee he has talked to has had a dream almost exactly like this one.  (this was 18 months or so after losing the second leg)

Have any other double amputees had a dream like this one?

And in most of my dreams, I walk or run, but don't know if it's real legs or prosthetics that I'm walking and running on.

« on: February 23, 2012, 01:25:12 AM »
I must be lucky or something.  I've only done the trick of forgetting the prosthetic and running for the bathroom ONCE.  I did fall on my left stump the day before they casted for my very first socket.  I laid on the floor and took pain pills, after 3 hours I was finally able to get up.

General Discussion / Re: Who is my "doctor"?
« on: February 23, 2012, 01:14:55 AM »
Because of the program I'm in for prosthetics (which also covers things like school if it helps me get back to work) I have to see a physiatrist.  This doc specializes in amputees and knows quite a bit about prosthetics, orthotics and stuff like that.  My prosthetist comes to these appointments also (at no extra charge) and they discuss with me various aspects of prosthetics, skin care issues and any questions I have.  He can also write prescriptions for physical therapy and knows of several places that have done work with amputees.

The doc I'm currently using, when he was in school (or his rotation in orthopedics) had a doctor/teacher who required students to spend a week or two using a wheelchair, a walker and various other mobility aids to learn from the ground up.

Keep looking and you'll find the doc you need.  My GP doc occasionally asks questions about the care and treatment from the physiatrist, but mostly in a way to keep communication open.  I did show my GP a rash type issue on my stump, and he made a suggestion that helped.

People should be able to do what they want, but they need to use their brain!

This guy had no lap because he was a double AK.  The only thing holding him in the ride was a bar over his lap.  Which he didn't have.  So he was stupid for going on this ride with the safety equipment on this ride.

Do what you want, but be responsible for what you do.

Just my 2 cents.

General Discussion / Re: Squeaky foot
« on: July 07, 2011, 10:15:25 PM »
I had a co-worker come up to me in the men's room and tell me the squeak in my foot was annoying the whole office and I should "do something" about it.  I didn't even know this guy's name!

I'm on my 3rd squeaky foot.  One of them we replaced all kinds of parts, foot shell, etc.  Nothing fixed it long term.  We even replaced the whole foot twice.  Not every step squeaked, but many of them did.  Got a new foot (reflex VSP) and it only squeaked sometimes.  The current foot (Soleus) squeaks randomly.

I've sprayed in silicone lubricants.  Replaced the sock INSIDE the foot shell.  Used talc.  Replaced parts.  Nothing seems to be a guaranteed answer.  Sometimes it means the sock between the foot shell and the shoe has a hole.  Sometimes the foot is wet.

So it's not just a problem for you.  It's plagued me for years now.  Randomly!

Let me know if you find a permanent solution.

(you can also see my kayak as well. Its a sit-on-top type. Real easy to use and loads of fun!)

Why isn't the Kayak sitting flat?  I've got an "ocean kayak" (brand name) and it's sit on top.  I know some have a rudder.

I was also looking for more options.  Like the first two options - do you drive them with or without any adaptive devices?  If so, what type of adaptive device? 

There are several interesting options for motorcycles around now that give a three or four wheel motorcycle experience.  One of these is advertising on TV (the Can-am) 2 front wheels and one rear wheel.  They're appealing to the tail end of the baby-boomers and maybe my age bracket (40's).  Fun of a motorcycle but easier and "safer".

I'm working to get my 1963 scooter running and legal again so I can save gas around town.  The only pedal on that is a right side foot brake for the rear tire.

General Discussion / Re: Missuse of handicap parking
« on: November 18, 2010, 09:40:52 AM »
The ADA law does not penalize small companies - those with less than a certain number of employees are exempt from enforcement, or if the cost of the modification would cripple the business.

Most of the buildings around here are old enough they were built before the law and unless there is major renovation of the structural part, are exempt from changes.  Although it's a pain in the ass when doctors offices have steps and no ramp, or a ramp that pre-dates the law and is very unsafe.  I've had to stop seeing some doctors because it's too dangerous for me to get in and out of their office!

General Discussion / Re: Missuse of handicap parking
« on: November 11, 2010, 10:04:02 PM »
That's what I'm doing now.  But someone (somewhere) said that this state agency (like a state business agency, like maybe the dept of labor?) would get on them too and had real power to make them take action.

I'm still trying to figure out who to talk to about the new "river commons" they built, it's completely inaccessible by wheelchair.  Brand new (3 years old).

General Discussion / Re: Missuse of handicap parking
« on: November 09, 2010, 09:15:58 PM »
I saw a message on SOME forum that said if you have problems with handicap parking issues, write a letter to department ______ at your state government.  This department has something to do with business and commerce and could possibly take action with the business on your behalf.  Anyone know what the heck I'm talking about?

I've filed my third complaint with Turkey Hill (aka 7-11, stop-n-rob, etc) about handicap parking spaces being used by employees, delivery trucks, etc.

General Discussion / Re: Missuse of handicap parking
« on: September 28, 2010, 09:46:23 PM »
But what about cars that are not displaying a permit?  I've been told "we have the permit, but didn't hang it" but this just reinforces the perception that you don't need a permit to use the spot.  Or cars that don't have a permit, they just don't care.  I have (ONCE!) persuaded the police to talk to someone, no placard, no disability, but he would not write a ticket.

The businesses need to make a complaint or the police won't write a ticket.  As a citizen, I do not have the authority to force the police to write a ticket for this.

Businesses won't enforce it for fear of losing a customer.

Businesses use the handicap spots for cart return racks at the grocery stores near me.  Or let customers just push carts into these spaces and don't have an employee clear them out.

Does a child with ADD qualify for a disabled parking permit?  In PA, yes.  The poor child may not listen to the parents and run through the parking lot.  (I call that cleaning the gene pool!)

Do people with parking permits park in the blue-lined area for wheelchair ramps?  yes.  Why? It's a handicap spot!  (they obviously didn't read the rules that came with the hang-tag, including "remove this before driving")

General Discussion / Great job - but?
« on: September 27, 2010, 12:07:55 PM »

I love hearing stories about soldiers who are able to move past a major injury, in this case a double amp (leg and partial foot). 

But a serious debate - should he really be able to go back to combat?  The Marines re-upped a guy who is blind, but he's working with wounded and blind soldiers in the states.  Combat?  You don't have time to change from "walking" to "running" legs in combat, let alone put one on if it's off.  Should these guys be back in a combat situation?

There is a new program that takes seriously wounded soldiers back to the place of their injury (or as close as possible) and back with the troops as a form of closure.  For many, this is what they are really looking for.  For those who need actual combad - I think they (Dept of Defense, Army/Marines) need to look at the overall risk to that soldier and the troops who will depend on them.

I'm not trying to start an argument, so please keep this thoughtful.  What do you think?  What if you were the guy who is now on patrol with an amputee?  In this "war on terror" even the green zones and "safe" areas are vulnerable to attack.

What are your thoughts?

General Discussion / Re: two topics to talk about,
« on: September 26, 2010, 09:29:26 AM »
2. just found out that a old shipmate of mine had to have a BKA of his left leg due to diabies, and as usuall the hospital did not put him in touch with any support group or individual amputee to help him through this, was on the phone with him and his wife for over  two hours answering their questions and i know by now they have more that need to be answered, he has great spirits and is planning a HOLLOWEEN costume, and as usual CAPT KID pegleg one.

Hospitals are generally dense on the issue, they don't know support groups and peer visitors are options.  The hospital can not give out patient info to you if you go and ask about new amputees (violates HIPPA law).  And won't let you put an informational flyer out for staff.

In my opinion, the ACA needs to focus on spreading the word in the medical community that there is a peer visitor system.  And the ACA needs to get better at sending out peer visit calls.  In 2 years I've never gotten a peer visit request from the ACA.  I know lots of people who have done the training and never talked to anyone.  The body is willing, but the mind is not functioning....

General Discussion / Amputee abused by police
« on: July 08, 2010, 09:18:18 AM »
Wow, Steve is usually the one with news story links!  I beat him to this one!

Police arrested a man, beat him, "ripped his prosthetic off" and locked him in a cage for a day.....

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