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Messages - anne f.

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1
General Discussion / Re: portable left foot pedal
« on: February 17, 2012, 10:53:43 PM »
I ordered it and it is on its way, will take some more detailed pics when it gets here, all though not really sure how to post pics on this site.

albi

2
General Discussion / Re: A angry leg
« on: February 13, 2012, 11:19:51 PM »
I noticed that they had some very reasonably priced Alps liners listed on e Bay the other day, anyone ever tried the Alps liner?

anne f.

3
General Discussion / Re: portable left foot pedal
« on: February 13, 2012, 11:13:20 PM »
Well, I'm going to give it a go, I'll order it tomorrow and let you all know how it works.  The first vehicle that I am going to try it on is hubbys giant Dodge Ram 3500 dually truck that I have never  had a chance to drive  :o and then if all goes well I am going to scare the heck of my hubby by telling him to put the pedal in his pride and joy, his Shelby Mustang Convertible, of course he'll have a heart attack  ;D until he realizes that I am bluffing because the pedal only works in vehicles with automatic transmissions!

albi

4
General Discussion / Re: A angry leg
« on: February 12, 2012, 11:19:50 PM »
Actually I think my cp told me that the last liner I wore thru was a new material for Alpha and they were hoping it would last longer but we had a good laugh when for me it actually wore thru  little bit faster.  I have also tried every combination of socks and 1/2 socks and nothing seems to help.
A lot of my problems stem from the fact that my limb is still atrophying, who new that 12 years since my amp and this would still be happening.  The minute I get a new leg I feel great and get really active and then lose weight and lose the fit again.

anne f.

5
General Discussion / Re: portable left foot pedal
« on: February 12, 2012, 11:07:26 PM »
Jack, I tried renting a car with hand controls  :o Holy Mackerel! It was a disaster, in fact I didn't make it out of the parking lot.  I had to park the car and return the keys. Driving with hand controls is a lot more difficult than I thought it would be and the city I was in could have rivaled San Francisco for the amount of steep hills it had and I would have caused an accident for sure.

anne f.

6
General Discussion / Re: A angry leg
« on: February 12, 2012, 03:04:07 PM »
Steve I don't know what color I would call my Alpha liner, I guess its a goldy tan flesh type color and its an  Alpha original uniform medium with small umbrella if I remember hearing the cp properly.  I am not sure why the  liners keep breaking down, like I say my socket fit feels fine until the liner is broken thru and then walking is very uncomfortable, I have also tried adding  socks to see  if I am too far into the socket as my cp says that some people can actually be too far in and get used that feel and think its ok but its not, but when I add a sock I get feel totally uncomfortable.
My cp actually added a leather patch trying to lift me forward away from the back where the liners wear but it has been a disaster.  He added the patch a month ago, a day or so before I was headed down to Scottsdale Arizona to attend the Barrett Jackson car show.  We got down there and walked around the first day and I developed the biggest sore I have ever had (about the size of an american nickel) the sore is on side of my knee to the outside of the front and I have been nursing it for a month, trying to get it to heal, it totally ruined my holiday.
That idea of Jacks to use the Locktite liquid glue sounds great, I would like to try it, Jack where did you buy the glue?

Anne F.

7
General Discussion / Re: Why are you even talking about this?
« on: February 11, 2012, 02:54:48 PM »
It's a thin line that we walk, being accessible to those who show a genuine concern but risking being disrespected by those who think that our accessibility and desire to educate means that all conversations are "no holds barred".  I like Steve's analogy of it being like losing a family member,  in what universe would it be cool to walk up to someone and start questioning them about details of their loved ones death.
I have had the odd person over the years say stupid things like "How do you stand it" or "I don't know how you do it, I couldn't stand it" at which point I have to look them in the eye and say I didn't choose this, what would you have me do, eat a bullet?  At which point they (sometimes) have the decency to look embarrassed, some people still have no idea how utterly idiotic their statements were.

Anne F.

8
General Discussion / Re: Check In,
« on: February 11, 2012, 02:41:14 PM »
Joe, words just can't express how sad I feel after reading your post.  It seems like as parents we can stay stoic and take pretty much take anything life throws at us, but when it comes to our kids health, that's a different story.  I will keep you and your daughter in my thoughts, miracles do happen and I pray that you and your daughter will return to good health.  It was your humor and helpful posts that got me thru that first year of my amp and I still look forward to seeing your posts.  Sending a prayer your way that you stay strong and that you are able to help all the newbies out there for many years to come.

Anne F.

9
General Discussion / Re: A angry leg
« on: February 11, 2012, 02:22:54 PM »
Hmmm, this is really interesting thread, I have a fairly new leg (7months old) and have gone thru 5 Alpha liners in that 7 months!!!  Yes, you read that right 5 liners.  Despite my cp doing everything he can to try and relieve the pressure behind my knee all 5 of the liners start showing wear behind the knee within days of starting to wear them.  Actually I don't ever feel any pain behind the knee with regards to the socket, I just start seeing the white color where the liner is breaking down and then it starts to deteriorate and then within the week there are actual holes in the silicone and then comes the pain as my skin gets sucked out thru the hole, and that pain can be very uncomfortable.

My limb seems to have become very bony all of a sudden (my amp was 12 yrs ago) and after reading the above I now believe maybe I won't be able to get away with the 6 mm Alpha anymore, although now that I think about it, I have always had a problem with Alpha liners wearing thru.

At one time my cp switched me over to Iceross and the liner was seriously indestructable, but despite it having these lines/waves manufactured in behind the knee which were designed supposedly to make bending the knee easier it was still very bulky (the liner was very thick), my biggest problem with it though was that evidently they don't make the Iceross with a small distal umbrella, my liner was kind of straight up and down not tapered and it had a huge umbrella where the pin was attached and with my tapered limb there was a load of air space  down out the bottom where the liner did not follow the shape of my limb, so that was when I was switched back to Alpha.

My insurance has reluctantly agreed to the cost of another casting for a new socket and I am on the lookout for a new type of liner as I have said to my cp I will never agree to have another Alpha.  I don't consider myself to be hard on the liner but I do live a normal life and if the Alpha liner can't stand up to everyday walking and a bit of housework then I am not sure how they stay in business, especially at the outrageous price they charge.

Steve, I also have a difficult like you were talking about, mine is a small fold of skin along the scar line.  When they did my amp they wrapped the skin from the back of my calf up around the front where the stitches were.  Right along the stitch line I have like a pucker in the skin where it inverts when my liner is on.  It only gives me grief when I have been really active or gone on a marathon length walk and then it becomes swollen, red and sometimes blistered.  For me the only way I can take away the discomfort is to smear a small dab of vaseline on the area before donning the liner, it seems to stop any tugging or shear forces on the skin but whatever you do only use the smallest of dabs because you don't want to interfere with the ability of the silicone to adhere to the rest of the stump holding it snug.  Probably something you have already tried but thought I would mention it just in case you haven't.

anne F
 

10
General Discussion / Re: Superbowl Sunday
« on: February 11, 2012, 01:49:06 PM »
I enjoyed the game but I have to admit I couldn't have cared less who won I mainly watched for the 1/2 time show with Madonna (pathetic) and the commercials which are always entertaining.  Just had to train myself to stay in my chair when the commercials came on and get up for snack etc when the game came back on haha,  ;) which of course is the opposite of what I normally do.

anne

11
General Discussion / portable left foot pedal
« on: February 11, 2012, 01:40:38 PM »
I would love to get a portable left foot pedal for when I use a rental car, at the moment I use a fixed left foot pedal and I love it, can't imagine attempting to drive without it.
I have located a website and am about to order but thought I might ask here to see if anyone has experience with this pedal.  I have been quoted a price of 399.00 plus 59.60 for shipping to Canada.

Here is the link to the website, love to hear any thoughts on this product before I order, thanks

http://www.plfa.org/

anne

12
General Discussion / Re: Ordering new sleeves and liners
« on: June 24, 2011, 12:59:08 AM »
Hmmm, I didn't know that there was such a thing as an Alpha Sleeve, will have to look that up and see what it looks like.  Don't get me started on why they heck we can't buy these products ourselves, it's like they would all of a sudden have to justify why they are charging twelve bucks for a casting sock (which is what my cp calls his 1 ply) there is no way that this 1 ply costs more than 50 cents to manufacture if that.
When you think about it is a form of discrimination to not be able to buy simple supplies like socks and sleeves directly.  If you told all people who suffer from circulatory problems that they have to buy orthotic or compression socks which are handily available at any drug store that they only way that they can buy them is thru their insurance company there would be an uproar.  I think a lot of people don't know what their insurance company is paying out for a simple sock on their behalf, its like as long as it does not come out of their own pocket they don't care and by the manufacturers not allowing the sale directly to the customer people never really get a chance to question the outrageous over pricing.  One of these days I am going to send Alberta Health Care insurance a sample of that cheap cotton tube that they paid twelve bucks for, I wear a pin lock system and the darn sock doesn't even come complete with a hole, I have to cut it myself and then watch it fray >:( 

13
General Discussion / Re: tingling in stump from diabeties
« on: May 22, 2011, 10:25:18 PM »
I started out taking 2000 mg of metformin and now I take 2 Janumet which is a combo of metformin and januvia, it works better for me but the janumet is expensive and my drug plan does not cover it all so I would love to try and wean myself off it or at least only have to take 1 a day.  My doc has spoken about getting the shots instead and I have been resisting, I have been told by someone, not sure who but told don't let them give you that first shot but don't know why exactly, is it a case of once you are on insulin shots there is no going back, isn't it pretty much the same way with metformin, I had heard that there is no stopping it once you start taking it but I don't know if there is any truth to any of it.

14
General Discussion / Re: tingling in stump from diabeties
« on: May 19, 2011, 08:49:22 PM »
Hi PegLeg, I am a type1 diabetic since my amp, diabetes was not the cause of my amp, rather the other way around for me.  I had a crush injury causing the amp and then gained 60 lbs the first year after my amp and low and behold started up with type 1 diabetes because of the weight gain. I do get the pains you describe, they are awful, it feels exactly like someone is jabbing a pin into the tips of my toes and no matter what you do there is no relief ie you can't message or add heat to relieve the pain.
For me these pains only come if my blood sugar is high.
Every now and then I get complacent and forget to test my sugars, for example if I am on holidays and if I don't watch what I am eating or in one instance I had the beginning of a sinus infection and it made my sugars go sky high and along with it I got all the symptoms, my eyesight was blurry,  lots of night time muscle cramps, frequent trips to the toilet and the stabbing pains you are describing.

15
General Discussion / Re: Check In,
« on: May 18, 2011, 12:07:14 AM »
Hi Joe, I didn't see this post, don't know how I missed it but was relieved to see that you had checked in.  Sorry to hear about your fingers, that darn diabetes is insidious isn't it.   I have been managing to keep my sugars under control (barely) I evidently have a hard head and learning that I cannot cheat and sneak any sweets is a hard lesson to learn but realization has finally sunk in to my thick head >:(
Have you had any chance to go camping at all?  We still have our 5th wheel, although we don't tow it (price of gas is too high) but we have it set up on a seasonal lot at a nice campground.  The ice has just melted off the lake (6 weeks behind schedule - it has been a rotten winter here in Alberta) so we go out this weekend to de-winterize.  I took a fall in the trailer last year, getting up to go to the washroom early in the morning and absentmindedly stepping into the socket to try and engage the pin and walked right out of the socket, trouble is in a trailer the space is limited, crashed into the wall as I went down, most likely the whole campground heard me go down  ;D woke me up in a hurry, that won't happen again!

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