Amputee Treatment Center Forum

GENERAL CATEGORY => General Discussion => Topic started by: ann on March 13, 2013, 01:30:34 PM

Title: ASLEEP {AGAIN}
Post by: ann on March 13, 2013, 01:30:34 PM


 
OUR  FORUM  IS  ASLEEP  AGAIN   ;)
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 14, 2013, 10:13:23 AM


 
OUR  FORUM  IS  ASLEEP  AGAIN   ;)
OK, let me add something.
Had an appointment with the VA Medecal Evaluation Board (2 DR's and my prosthesists)yesterday to try and convince em why I felt I needed a MPC leg.
This Doctor/Kid (not any older than either of my kids) is asking why I need a better leg?
What's wrong with what I got?
Can't I make this one work?
ETc  etc.

My Prost. finally steps in and explains in DR terms what I was trying to say.
I guess "This Leg Sucks!!"  means something else in Dr talk.
Anyway, they finally, reluctantly agreed to start the process for casting of a new socket, and working on getting a MPC leg.

While I was leaving I stopped to talk to another amputee in the waiting room.
While there, these two guys walk in, one a LAK and the other with a briefcase.
The guy with the briefcase hears me talking and says, "then you'll like what I got here"
He pulls out a Plie' knee.
Of course, I already done my homework and we have a great talk.
Then I talk with the LAK, and he shows me all it can do.
Nothing better than a live demonstration.
Next WEd is my first appointment for the casting.
I want a carbon fiber socket (that fits) a Plie' knee and whatever the best foot to go with it is.
We'll see.

And that's what happened yesterday.

Getting excited again
Title: Re: ASLEEP {AGAIN}
Post by: ann on March 14, 2013, 10:37:37 AM

Sounds as if U were in the right place @ the right time.....very happy for U.  I know with UR attitude U will be on the road to anywhere U want to go.    I am having some trouble with getting a new liner to fit correctly....there isn't enough padding @ the bottom to keep me from hurting while wearing it.  This will make the 3rd. one they R making me.  Should be here today by FED-X.   U know what they say, third one is a charm.  Sure hope so.  I can't believe when they have the one U R wearing everyday as a pattern , they have such a hard time duplicating it.  Just saying.........

BTW, glad I received an answer to my moving statement.   :)
Title: Re: ASLEEP {AGAIN}
Post by: Steve C on March 14, 2013, 08:21:55 PM
Good luck Dave. Hope your new leg is just what you want.

Myself, I've been a bit quiet because of a night out. I hadn't been out for a while so I went to a friends birthday at the pub and had a great night. Next day I was hungover. The following day I had the flu. 2 days later bronchitis hopped on and a week later an inner ear infection joined the party. Sick for a few weeks so far. If you haven;t had this little combo, we all know the flu feeling, bronchitis makes it hard to breathe and the inner ear infection gives a lovely dizziness and double vision. I must admit that trying to get onto a stool in a glass shower, on one leg while dizzy and with bad vision is not something I enjoy!
Title: Re: ASLEEP {AGAIN}
Post by: ann on March 14, 2013, 10:48:40 PM
 Just do not fall & not have on UR button to push for the ER guys....or U could say this  "I've fallen & I can't get up" ...kidding, just be careful U do not fall in the shower.,  U could end laid up for several days.   ;)
Title: Re: ASLEEP {AGAIN}
Post by: chuck p on March 16, 2013, 12:41:42 AM
Hey Dave,  What good timing that you got to meet up with a fellow AK with a Plie` knee. I too, am very interested in that knee. Not that a C leg is a pig in a poke but the Plie` appears to have advantages over the C leg. It is still newer technology and not as universally widespread so its good to see one upclose. I am not sure i could personally benefit from one as i have always been a problematic fit for a good   socket  [short bad stump ]. You can bet i'm going for it [ if possible ] once i am able. You need a good socket  or all the high tech knee and feet wont do you any good. It  appears you have a fairly long residual limb so that should help you in the socket situation. Check out college park for a good  foot. i have had great luck with them.  They articulate well when you are outdoors and step on an irregular surface.....like a fist sized piece of gravel. Trade offs [ like everything else in life ] is they dont  have a lot of  longevity. The foot has lots of soft rubber bumpers in it.....that makes it work so well but also wears out quickly.  I think college park now makes another model with stiffer rubber [but less action ].  Also i had a Cirrus foot about 20 years ago [looked like the Terminators foot!] That foot kicked ass until i wore it out. Anyway, I am used to being very active outside and would beat the @#$%^  out of my leg and all parts so i must say those are the 2 feet i liked. Best of luck to you on that knee...dont let insurance push you around! Let me know how you make out.   p.s. thanks for responding to my post  earlier
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 17, 2013, 07:05:59 PM
Ann: Yea, I've got a small bump at the very end on my stump.
No liner.
After an hour or so, my stump slides down and rests on that dern bump/bone spur. Hurts like heck.Hopefully this new socket ill rectify that problem

Steve, Yea, I've had a few of those nights when I lived in Ipswitch.
New to the pub thing and dart thing. But I adapted quickly.
Hope you shake all them darn bugs off and get back to living life.
And, maybe a few less pints at the pub might help.
(I quit drinking years ago)

Chuck: Yea, great timing.
At this point, I wanna make the best of what I can get done.
Ins is no problem as i'm going thru the VA.
Then again, the VA may be  a worse battle than Ins.


again, I totally admit my newness to this amputee thing (10 months ago) so I'm still learning.

One thing tho, when I was laying in that bed, shortly after the accident, I promised myself I'd be riding again, ina  yer.
We;;, I just ordered me a scooter trike.
I ain't got the $$ for  a goldwing, but this scooter trike will help me get back to riding again, and a little more freedom, if only the weather would break and spring would get here.

Again, all my love to all of you.
May God bless you and help you get thru this little bump in the road.

Dave
Title: Re: ASLEEP {AGAIN}
Post by: uScott on March 18, 2013, 01:46:51 PM
DaveC, post pictures of that trike when you can!

Don't underestimate a mere scooter. We've got a Silverwing that's "only" 600cc, easily makes freeway speeds and a lot more, a very nimble and capable machine. Anything that get your knee(s) into the breeze is good by me!
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 18, 2013, 11:13:09 PM
this is a pic from their site
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 18, 2013, 11:27:36 PM
Another angle
Title: Re: ASLEEP {AGAIN}
Post by: ann on March 20, 2013, 09:53:35 AM

Dave, that is a cool bike...once U get UR leg, I can just see U out tooling around.  Did I hear U say U were Columbus.....I live afew miles from Athens, Oh.  There used to be a lady from around Cincinniti on here, but haven't heard from her lately.

Have a nice day.   :)
Title: Re: ASLEEP {AGAIN}
Post by: Steve C on March 20, 2013, 11:15:47 AM
Quote
Did I hear U say U were Columbus.....I live afew miles from Athens, Oh.

Ann, you little flirt. ;)

(It is a lovely bike. Enjoy!)
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 20, 2013, 11:42:40 PM

Dave, that is a cool bike...once U get UR leg, I can just see U out tooling around.  Did I hear U say U were Columbus.....I live afew miles from Athens, Oh.  There used to be a lady from around Cincinniti on here, but haven't heard from her lately.

Have a nice day.   :)

Yes mamm
Columbus I am
Maybe I can take a little road trip this spring/summer
Would like to meet ya
Dave
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on March 20, 2013, 11:45:04 PM
Thanx Steve
It's a start anyway
Title: Re: ASLEEP {AGAIN}
Post by: Dolphin on March 29, 2013, 10:35:05 PM
You can read my post regarding plie'2 I love it!  Not sure your weight and all that stuff but I know freedom innovations makes a lot of good feet with action. A lot of the other feet I call rock feet because it is like walking on a rock or I should say a brick.  The good thing with feet must of them have a trial period that you can actually wear them, I would suggest trying different feet, I know amps that love the freedom renegade xt, the highlander. I have not had much luck with OB feet really stiff and CP feet some situation.
Best of luck. No more sleeping!
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on April 01, 2013, 12:30:59 PM
You can read my post regarding plie'2 I love it!  Not sure your weight and all that stuff but I know freedom innovations makes a lot of good feet with action. A lot of the other feet I call rock feet because it is like walking on a rock or I should say a brick.  The good thing with feet must of them have a trial period that you can actually wear them, I would suggest trying different feet, I know amps that love the freedom renegade xt, the highlander. I have not had much luck with OB feet really stiff and CP feet some situation.
Best of luck. No more sleeping!

Yea, at my last appt, they measured me for  the carbon fiber socket. Next is fitting, which should be in a few days.
Then get the knee and I believe, he said the Renegade foot.
I haven't done as much research on the foot as I have the different MPC knees (C-leg, Plie, Rheo, etc) and have pretty much settled on the Plie.My leg person (he ain't a Dr) is gonna start me on the Plie, but said he still wanted me to try the c-leg.
I will, but from what I now read, I think comparing the two (quicker response, battery, etc) it's gonna be an easy decision, I think.

Anyway, the sun is shining, I'm getting my new scot today or tomoro, I'm alive, I can walk even if it's on a crappy leg for now, I got a job, and ain't complainig.

Hope everyone hade a great Easter.
God is great

Carry on

Dave
Title: Re: ASLEEP {AGAIN}
Post by: dannyy on April 02, 2013, 08:23:59 AM
Wishing you the best, Dave
I wouldn't worry about taking advice from your leg guy because he isn't a "Doctor". Whenever I've needed a new leg or liners and had to get a prescription from my doctor, my prosthetist writes out what I need. I then give the information to my physician, he copies it down, and then submits it to the insurance company for approval. The "doctor" doesn't know crap about amputees.

Danny
Title: Re: ASLEEP {AGAIN}
Post by: ann on April 02, 2013, 09:52:48 AM

True here also Danny.  Doctor just writes out the scrip. for what the prosthetist says  I need.  My doctor had never seen an amputee before.   ;)
Title: Re: ASLEEP {AGAIN}
Post by: Dolphin on April 05, 2013, 08:34:00 PM
Ask why they want to try the cleg if you like e other one first.  The cleg makes lots of promises about different modes etc both they have to set it and you only have 2, with the Plié 2 programmed correctly it will do everything you need including very slow walking, back words if you need to and no remote, and a simple battery that is easy to replace and you do not need exspensive chord running across the room to recharge, also alignment is different for cleg, not normal position.
Title: Re: ASLEEP {AGAIN}
Post by: chuck p on April 07, 2013, 11:54:56 PM
HEY Dave,   Just curious like dolphin as to why your prosthetic guy is pushing the c leg. Is this Hangger prosthetics by any chance? I ask because they are sort of " married" up with otto-bock concerning the c leg. Lots of pro's and cons about the whole thing. I once had a c leg about 15 years ago ....new tech back then [ 1st generation] . didnt work out.....socket went up my butt...very heavy and it rubbed me a bloody mess.  But I could almost jog and go down steps foot over foot....that was a rush....have never done it since. My prosthetic guy was going to fix it...lost my charger ; then the leg.....he eventually left or was dismissed. I don't mean to dis hangger but it did leave a bad taste in my mouth.  They are pushing for a new c leg for me again once I heal up more but I would like to explore options like the plie. I'm sure new c legs are good but hangger does have an agenda so heads up!  best of luck.
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on April 08, 2013, 12:26:22 AM
I go in tomorrow for the first fitting of the new carbon fiber socket.
Then I'm sure another adjustment, then another fitting then I'll be ready for the Plie'.

I told him that's what I wanted. He said OK.

He has to call in the Freedom guy  for the fitting/programming etc then I should be ready to rock and roll

My prosthetist isn't pushing the cleg, just making sure it's my decision on what works best for me.(VA talk for 'it's your fault if it don't fit/work properly')

Actually he's pretty good, just slow (but that's a VA  issue, not his.)

So, I should be up and running in a couple weeks.

I chose the Plie' for all the reasons given
battery
water resistent
change in pace
not being a step behind
etc
etc

Looking fwd to it

thanx again all

Dave
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on April 24, 2013, 01:41:33 PM
I go in tomorrow for the first fitting of the new carbon fiber socket.
Then I'm sure another adjustment, then another fitting then I'll be ready for the Plie'.
I told him that's what I wanted. He said OK.
He has to call in the Freedom guy  for the fitting/programming etc then I should be ready to rock and roll
My prosthetist isn't pushing the cleg, just making sure it's my decision on what works best for me.(VA talk for 'it's your fault if it don't fit/work properly')
Actually he's pretty good, just slow (but that's a VA  issue, not his.)
So, I should be up and running in a couple weeks.
 chose the Plie' for all the reasons given
battery
water resistent
change in pace
not being a step behind
etc
etc
Looking fwd to it
thanx again all
Dave

This is a shameless BUMP for Annie to show that we ain't dead yet...

I've been to the Dr a couple times since my last post (sound like a confession doesn't it)
And I've been moulded, fitted and refitted with the new, lighter, thinner, better fitting socket.
Next step (this week hopefully) I go in for the final socket fitting and attchment of the Plie, and programming.
I'm kinda stoked cause i'm so tired of the old socket ripping me up in just 8 hours of wearing it, then suffering for 2 more days to heal up.

But, Life is good and I'm alive.
I got my new trike and enjoy being back in the wind again.
Will post some pics of the new leg when I get it, (not like everyone here ain't seen one, but for me, the new guy, I'm pleased as punch to be (hopefully) walking (and riding) pretty much pain free after just 11 months of damn near getting killed.

So, Annie, what's new with you??

All my prayers to everyone here

Dave
Title: Re: ASLEEP {AGAIN}
Post by: Dolphin on August 06, 2013, 05:42:05 PM
How's your leg?  I am curious why they did not put it on with your check socket, kinda weird to wait until socket is all done because the alignment may change for you With a different knee.
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on August 08, 2013, 10:09:33 AM
How's your leg?  I am curious why they did not put it on with your check socket, kinda weird to wait until socket is all done because the alignment may change for you With a different knee.

Sorry for the delay.
Well, good and bad
The Plie2 is great.
The socket sucks
It's about 3/8 of an inch too long, I gotta wear wedges on my good foot, after a few hours my stump sweats, shrinks and sinks lower into the socket, hitting the bottom, and rubbing on my crotch.

Good news, they're working on a new knee (I got a loaner now), shortening the socket and tightening it up a little so I don't slip further into it.

But, I'm still tryhing to be positive, knowing it's only been a year and I may be expecting too much (but from the VA, not really)

So, I'm up and about, a little slower than I wanna be, but if I manage my time, I can make it work, for now.

Thanx for asking

Dave
Title: Re: ASLEEP {AGAIN}
Post by: Dolphin on August 09, 2013, 11:17:02 PM
Is the whole prosthesis to long? If so why didn't they just shorten the pylon going into foot?
What foot do you have? The PLie2 comes in a knee disartic version if you are really tight on space, but they never should have your prosthetic side longer than your sound side, you must always be catching your toe and how could they program the knee correctly. The Va usually does not have a problem paying for a new socket because you do shrink down and a year is a LNG time to go on your first socket.  Be sure the socket fits comfortably and if you are hitting bottom that s what you are suppose to do but with pressure evenly distributed so you do not take all the weigh on the bottom. Otherwise when they say make it tighter to hold you up that will just cause more pressure and you will eventually sink again. They need to trim the trim lines because it should not rub in the crotch. That system s the old quick and dirty fix and does not let you us your muscle.  How LNG is your residual limb? Is it off at the knee or much shorter?
Stay positive
Title: Re: ASLEEP {AGAIN}
Post by: ann on August 10, 2013, 01:52:44 PM

Dave, I know it can be a hassle for the fitting process.  It took over a year when a company {which I won't name} kept messing me around.  If it doesn't fit, YOU will have a hard time of it.    :(      Hope they fix it soon.
Title: Re: ASLEEP {AGAIN}
Post by: DaveC on August 12, 2013, 10:30:30 AM
Is the whole prosthesis to long? If so why didn't they just shorten the pylon going into foot?
What foot do you have? The PLie2 comes in a knee disartic version if you are really tight on space, but they never should have your prosthetic side longer than your sound side, you must always be catching your toe and how could they program the knee correctly. The Va usually does not have a problem paying for a new socket because you do shrink down and a year is a LNG time to go on your first socket.  Be sure the socket fits comfortably and if you are hitting bottom that s what you are suppose to do but with pressure evenly distributed so you do not take all the weigh on the bottom. Otherwise when they say make it tighter to hold you up that will just cause more pressure and you will eventually sink again. They need to trim the trim lines because it should not rub in the crotch. That system s the old quick and dirty fix and does not let you us your muscle.  How LNG is your residual limb? Is it off at the knee or much shorter?
Stay positive

1. My stump is long,  right at the knee.
2. They already have the shortest  shank they can put on. They're gonna try to make it shorter by creating a indentation at the end of the socket
3. My 'knee' is actually right about the middle of my shin  of my sound leg.
4. Yea, they're working it, and gonna trim the socket so it doesn't rub my crotch, and re-re-program the Plie again once the new one gets in. The VA has a contract with Plie and they gotta go to procurement, etc. it should be in soon.
5. I'm staying positive. as I hope someday it'll all come together.

Thanx
Dave
Title: Re: ASLEEP {AGAIN}
Post by: Dolphin on August 17, 2013, 09:26:07 PM
Hang in there the new knee is probably a acre mount for a knee disartic, and a good prosthetists should not need to much room for that mount with the carbon fiber socket.. What foot is on it because f the lowere section is to long that should not happen unless they are adding to much stuff, I use that word loosely.  Freedom should be able to work with the prosthetists to fix this.
Hope it works out if not let me know😊