Author Topic: 10-year-old disabled girl suffers benefits penalty for doing well  (Read 3488 times)

Offline Annie

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Re: 10-year-old disabled girl suffers benefits penalty for doing well
« Reply #15 on: November 09, 2009, 11:45:13 AM »
I have been following this and suspect that we are probably not getting the full story here, maybe there are other problems, they mention certain things but not sure how that affects her getting around. To be honest the benefit system over here is a bit of a minefield and I am not sure of her mothers circumstances, but, as an amputee, I know it is sometimes difficult to know how to 'tick' or 'not tick' the boxes on the questions asked on benefit forms.  We can go from looking relatively normal and fairly active to 'disabled' in a matter of minutes, being dependent on whether we are wearing prosthetics, how well they fit, are working etc. etc.
 
When I lost both my legs as a young teenager, things were very different to how they are today, there were no benefits on offer and both my parents worked, albeit part time in my mothers case, and about eighteen months later I myself also had a part time job I did at weekends and school holidays, though I was provided with a taxi which used to take me to school and back for several years. My mother used to accompany me to my many hospital appointments in the early years, but I presume this is more difficult for single parents having to also support families, and as someone else mentioned the job market in the UK is particularly difficult at the present time, and even though we don't want always want to admit it, living as an amputee is, as I often put it, high maintenance sometimes.

As well as this,  the prosthetic service in the UK can be a bit of a post code lottery, so not sure what the situation is  for this child, but people sometimes report waiting several weeks for appointments, difficulties in access to specialists, waiting for components etc, lack of spare limbs etc. etc. and if you are unable to wear your prosthesis, the weeks can tick by.  Its very different to the service I had nearly forty years ago as a teenager, the prosthetics I wore then were pretty basic, and made out of metal on hospital premises without the technology we have today, but for the best part they kept me very mobile most of the time, which was lucky for me because .... and this is I think the big difference .... that  in those days was if you couldn't walk or access somewhere, then you usually didn't go ... things weren't put in place for you ... so ... there are always swings and roundabouts  ....  maybe we shouldn't judge to harshly and that the help she is currently getting makes it easier for her to do the things she is currently able to do.