Author Topic: Hi from a newbie.. My story  (Read 2402 times)

Offline masti7

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Hi from a newbie.. My story
« on: May 07, 2009, 12:45:58 PM »
Hello everyone. I am rather new to the forum and just found it today. I have been suffering from diabetes for 20 years and just last week found out that I will be loosing my left leg :( I am very sad and terrified and do not know what to do. If anyone has been through this what points of info would you give me to be prepared?

Thanks

Offline pegleg jack

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Re: Hi from a newbie.. My story
« Reply #1 on: May 07, 2009, 05:32:24 PM »
Masti7, will help as much as i can, i am a bilaterial bka my self have been since 2002 march,
First need to know where you are, that we may be able to send you or have you get a hold of a amputee support group where  you can talk to one, face to face.

second, how much pain are you in if you are in a lot, i recommend that when you have the operation to have them about 3 days ahead of it start deading your leg, and by all means have an epadual done on you before the operation, also check in to having a ETRL procedure done, these two things have been proven to cut down on having a guy by the name of MR. PHANTOM show up on you real bad after the operation.

third, what kind are you have a AKA or a BKA, There is a lot of differances between the two and how your prothestis is made.

Also last but not least, WELCOME TO THE FORUM, you will find a lot of real good information here that you are looking for.
you-all have a great day.

Offline tbrbeast

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Re: Hi from a newbie.. My story
« Reply #2 on: May 07, 2009, 05:35:09 PM »
Welcome to the forum.  I am also a diabetic.  I am also a bilat transmet amp (no toes either foot) as a result (diagnosed at the same time I lost the toes on the right foot).  

First, what you are experiencing and going through is totally normal.  

Second, see if you can find a local amputee support group in your area, contact them and ask to speak with another amputee, preferably one with a similar amputation.  Ask lots of questions.  If you can't find a group or the distance is too great, contact the Amputee Coalition of America (ACA).  They have a great website with lots of information but more important for you, they have a program called Peer Visitation.  Peer visitors are amputees who volunteer their time to talk with and support people facing amputation or who have had one.  The visit or visits can be in person, over the phone, by email etc.; your choice.  Key here is information.  Many of us didn't have this option; I don't want someone else to go through what I did because someone didn't think to tell them or help them to locate resources, etc.

3.  Find a good leg man or woman.  Do it before your surgery.  Interview as many as you can until you find someone you like and trust.  Ask your doctor, your surgeon, other amps who they recommend and why.  You are going to essentially live with this individual for a very long time so you need to be able to believe in and trust them.

4.  Talk with your surgeon well before the surgery.  Find out what he/she is going to do, why and how.  If at all possible, if they haven't done it before, get your surgeon together with your leg person so that each understands what is needed on both ends to make this work with the least impact to you.  You don't want your surgeon doing something that prohibits or limits what type or types of prosthetics you can use.  You might also ask if your surgeon has talked with a vascular specialist, again to make sure that there won't be any problems down the road.  From what I keep hearing, this usually isn't done but perhaps should be part of the process.

5.  Make sure your blood sugars are under control.  With 20 years of experience, this should be old hat.  If they are, healing will be faster and easier.

I know this is a tough time for you.  Fortunately, things are as bad as they seem.  You are gaining another full time job.  Frankly, and given my druthers, I would much rather be an amp than a diabetic but I am both so I have to deal with it.  Both are 24/7/365 with no vacations, piss poor pay, and no benefits but lots of expenses.  I can be done; members here are proof of it.  

I am sure that others here, who are leg amps, will also respond with additional information.  Knowledge in this game is power and will make it easier for you to get through this.  

Keep us informed of your progress.

Offline herb

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Re: Hi from a newbie.. My story
« Reply #3 on: May 08, 2009, 07:53:54 AM »
Hi Masti7 - I lost my left leg to a motorcycle accident several years ago. As tbrbeast mentioned, it is extremely important to find a good prosthetist to get you up and walking as quickly as possible. You also need to find the right surgeon who is willing to take the time and effort to leave you with a residual leg that works well with a prosthesis. If you are having a below knee amputation, look into an ertl procedure amputation. It took me about a year after my amputation to get back to a full, normal life where I can do pretty much anything I want. There is going to be a lot to learn about adapting to your new situation. Recovery from the surgery was fairly quick for me and I was in my first prosthesis in a month. good luck herb